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Living with Spina BifidaA Guide for Families and Professionals$
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Adrian Sandler, M.D.

Print publication date: 2004

Print ISBN-13: 9780807855478

Published to North Carolina Scholarship Online: July 2014

DOI: 10.5149/9780807867860_sandler

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Focus on the Family

Focus on the Family

(p.209) Chapter 10 Focus on the Family
Living with Spina Bifida

Adrian Sandler

University of North Carolina Press

This chapter shows that one of the major revolutions in children's health care during the last century is the discovery of the critical role of the family in children's lives. It seems laughable that the medical community could have overlooked this simple fact, but it's true. As recently as the 1960, many major pediatric hospitals had no place for parents to stay with their sick children, and many infants and toddlers literally withered away in the despair of separation. The past ten years have witnessed the most significant commitment to family-centered health care. This trend has been championed by the Association for the Care of Children's Health. In the author's work with children with special needs, he has come to rely on parents as experts on the subject of their children.

Keywords:   major revolutions, children's health care, family, medical community, pediatric hospitals

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