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Living with Spina BifidaA Guide for Families and Professionals$
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Adrian Sandler, M.D.

Print publication date: 2004

Print ISBN-13: 9780807855478

Published to North Carolina Scholarship Online: July 2014

DOI: 10.5149/9780807867860_sandler

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Pregnancy and Childbirth

Pregnancy and Childbirth

(p.41) Chapter 4 Pregnancy and Childbirth
Living with Spina Bifida

Adrian Sandler

University of North Carolina Press

This chapter discusses a young couple, Mr. and Mrs. K., who were referred to the author; the couple had just received a diagnosis of spina bifida. This was their first pregnancy. Mrs. K. had a raised AFP, and the ultrasound had confirmed their worst fears. At seventeen weeks of gestation, the female fetus appeared to have a large lumbar myelomeningocele and hydrocephalus. They had been told that the hydrocephalus was a bad sign. When the author saw them the next day, they were composed and asked many questions about spina bifida and the implications of the scan results. The author could not be very specific in his answers and tried to give them a likely range of possibilities. Mr. K. was most concerned about whether his daughter would walk, run, and play. Mrs. K. cried and indicated that she mostly feared that her daughter would never learn to talk because of the hydrocephalus.

Keywords:   spina bifida, first pregnancy, raised AFP, large lumbar myelomeningocele, hydrocephalus

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