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Living with Spina BifidaA Guide for Families and Professionals$
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Adrian Sandler, M.D.

Print publication date: 2004

Print ISBN-13: 9780807855478

Published to North Carolina Scholarship Online: July 2014

DOI: 10.5149/9780807867860_sandler

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The Adolescent and Young Adult

The Adolescent and Young Adult

(p.187) Chapter 9 The Adolescent and Young Adult
Living with Spina Bifida

Adrian Sandler

University of North Carolina Press

This chapter argues that there are important medical issues in this age group, and that there also exist unique and critical developmental and psychological issues specific to adolescents and young adults. What services are available to meet these complex needs? Sadly, this age group has historically been neglected when it comes to provision of services. A recent survey from the National Center for Youth with Disabilities (NCYD), an information and resource center in Minneapolis, showed the continued existence of major service gaps for youth with disabilities such as spina bifida. A large proportion lack access to adequate primary health care. Huge numbers of disabled youngsters are uninsured or lack health care financing. Preventive and health promotion services are variable.

Keywords:   important medical issues, psychological issues, adolescents, young adults, NCYD, Youth with Disabilities, NCYD

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